Hidden impacts

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"I suffer from sensory overload. Going to the shop sets it off. A car driving past us on the road can set it off. So it’s something that I am impacted by every day on multiple occasions."

Toni, Young Survivor of Stroke

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Sensory overload

Young survivors of stroke talk about sensory overload and how it affects them every day.

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Changing Expectations: Becoming a Grandmother

In my pre-stroke life I imagined my role as a grandmother entailing visiting my daughter and assisting where I could, babysitting whenever the need arose, reading a multitude of picture books, singing songs and, as she got older,  cooking and craft activities, and walking and exclaiming at the joys of nature. In my head I was going to be as vivacious and engaging as any Playschool presenter.

The reality is the effects of my stroke mean I don’t drive so any visit has to be well planned with an accompanying driver, and with sensory overload that can be set off by a baby crying, I can’t be left to babysit by myself…it is a case of the babysitter needing their own babysitter/carer. That same sensory overload results in me not being able to go for walks by myself so slow ambling strolls with my hand being clasped by little squishy fingers will be limited and whereas once I took so much delight in reading out aloud picture books with accompanying voices and sound effects those same sentences will be stilted and intonation may be non-existent.

Read Toni's full blog post (EnableMe website)

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